The progression of my disability due to Multiple Sclerosis has been difficult. Yet over time I have learned to cope and live well in spite of it.
Each loss of functionality I experienced reminded me of a loss I had once helped a patient deal with. My years as a physical therapist helping patients came back to help me. I now understand far better the importance of living well with a disability, both emotionally and functionally. Life should go on, the needs are the same. Having friends, being involved, doing the things you care about.
This blog is my attempt to share my knowledge and experience as a physical therapist, my memories of my former patients and my own successes at living well with the disability from MS.
Parkinson's Disease is one of the complex chronic debilitating neurological diseases that will greatly benefit from basic research. It affects 500,000 people in the U.S. and is second only to Alzheimer's. World wide it is estimated 6.3 million peo… more »
Technology and it's use is changing rapidly. In many ways it means changing the way we do things. But to use it well it requires us to learn, experiment and think about what's the best use of technology for ourselves. For example cell phones use… more »
In the corner of my living room there is a small computer table. On it sits my ergonomic key board, LCD 19 inch monitor and mouse (track ball). To the left of it is my printer and a paper filing system beneath it. To the right is my scanner… more »
What’s a day! And how great it is to get outside under my own power in my electric wheelchair. Having been inside for so much of the winter, breathing fresh air feels so amazing. It is especially so this Spring, as I was recently forced to use my… more »
Ellie’s Rules for Coping Well with MS and Disability
Admit What's Happening
Set a Functional Goal
Attitude is Everything
Be an Advocate
Live Life to the Fullest
Then All You Need is Love