The progression of my disability due to Multiple Sclerosis has been difficult. Yet over time I have learned to cope and live well in spite of it.
Each loss of functionality I experienced reminded me of a loss I had once helped a patient deal with. My years as a physical therapist helping patients came back to help me. I now understand far better the importance of living well with a disability, both emotionally and functionally. Life should go on, the needs are the same. Having friends, being involved, doing the things you care about.
This blog is my attempt to share my knowledge and experience as a physical therapist, my memories of my former patients and my own successes at living well with the disability from MS.
Technology and it's use is changing rapidly. In many ways it means changing the way we do things. But to use it well it requires us to learn, experiment and think about what's the best use of technology for ourselves. For example cell phones use… more »
Three events happened this past month while I was chasing down and eliminating spam on my blog . The first was a book I read :"Curing MS " by a renowned Neurologist Howard L.Weiner. The second was the death of Max Starkloff who was a pioneer i… more »
The bulbs my family helped me plant in the fall are all coming up. It started with the crocuses in the middle of April. Then the Siberian Squill and the small Purple Irises poked up to welcome the big ones. The Tulips, Hyacinths and Daffodils. Ev… more »
Winter is leaving very slowly here in upstate N.Y. However the tulips are finally coming into bloom. Soon there will be so many events of walks, runs, biking, golf etc. in the city and state parks, on our tree lined streets and at our Saratoga Fla… more »
Ellie’s Rules for Coping Well with MS and Disability
Admit What's Happening
Set a Functional Goal
Attitude is Everything
Be an Advocate
Live Life to the Fullest
Then All You Need is Love