The progression of my disability due to Multiple Sclerosis has been difficult. Yet over time I have learned to cope and live well in spite of it.
Each loss of functionality I experienced reminded me of a loss I had once helped a patient deal with. My years as a physical therapist helping patients came back to help me. I now understand far better the importance of living well with a disability, both emotionally and functionally. Life should go on, the needs are the same. Having friends, being involved, doing the things you care about.
This blog is my attempt to share my knowledge and experience as a physical therapist, my memories of my former patients and my own successes at living well with the disability from MS.
RELUCTANCE To go with the drift of things. To yield with a grace to reason. And bow and accept the end. Of a love or of a season. Robert frost This is one of my favorite poems and many times I refer to it. I remember all… more »
The beginning of October my husband and my two sons and I piled into our van with my wheelchair on the lift in the rear of the van. We headed off to Cape Cod to visit my brother and his wife. Then on Saturday drive into Boston for the Red S… more »
A few weeks ago I was doing so well. I was making all these plans and then "bam" down again- plans cancelled. But after my monthly sol-u-med this month I was back up making plans again. What a crazy life! No wonder people look at me… more »
I've been thinking a lot about balance lately. Probably because I feel that I'm fighting hard to stay in balance. When we think of multiple sclerosis and balance safe mobility is what comes to mind. But the balance I'm talking about is more… more »
It's so easy to be upbeat and happy about life when everything is going great. Today with all the things in this changing world that are so uncertain and frightening we all feel extra stress. And uncertainty and change are definitely the biggest stresso… more »
Ellie’s Rules for Coping Well with MS and Disability
Admit What's Happening
Set a Functional Goal
Attitude is Everything
Be an Advocate
Live Life to the Fullest
Then All You Need is Love