Category: my life

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02/04/12

Permalink 01:38:00 pm, by eleanor Email , 1571 words   English (US) latin1
Categories: Advocacy, my life, Thoughts, information

WHAT ARE PEOPLE WITH MS GETTING FROM THESE HIGH PRICED PRESCRIPTION DRUGS?

Cures?..  Total relief from  MS Symptoms?..  Progression prevention? The answer is no to all of these.  We with MS do get a shorter duration and decrease frequency of a relapse which is helpful.  And there does appear to be a… more »

01/12/12

Permalink 08:09:00 pm, by eleanor Email , 341 words   English (US) latin1
Categories: my life, Thoughts, information

MY TRICKS TO STAY UP WHEN MS IS PULLING YOU DOWN

It's hard to stay up when MS is pulling you down.  Whether it's pulling you down due to lack of energy including that terrible MS fatigue or because you haven't come out of an exacerbation speedily yet. Lets be honest you can be upbeat and positive… more »

01/09/12

Permalink 11:31:00 am, by eleanor Email , 1172 words   English (US) latin1
Categories: my life, exacerbations, remissions, Thoughts

WITH MS SOMETIMES YOU JUST HAVE TO GO WITH THE DRIFT OF THINGS

RELUCTANCE To go with the drift of things. To yield with a grace to reason. And bow and accept the end. Of a love or of a season. Robert frost   This is one of my favorite poems and many times I refer to it.  I remember all… more »

11/01/11

Permalink 12:39:00 pm, by eleanor Email , 526 words   English (US) latin1
Categories: my life, Thoughts, information

When you start losing functional ability in MS

I was taking my afternoon nap in the MRI machine the other day.  With all the banging , bells and whistles that you endure from that machine scanning your brain and cervical spine it can be nerve wracking.  But I had the technicians turn on ni… more »

10/11/11

Permalink 09:24:00 pm, by eleanor Email , 710 words   English (US) latin1
Categories: my life, exacerbations, Thoughts

WHY DO I ALWAYS SAY, "I'M FINE" ?

When someone asks me "how are you?"  I always say" I'm fine" even if I feel like an October wilted vine. Then if someone suggests that I'm looking tired I usually  say "I'M FINE" even if I feel like a November cru… more »

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Rules

Ellie’s Rules for Coping Well with MS and Disability
Get Knowledge
Admit What's Happening
Set a Functional Goal
Adapt Lifestyle
Attitude is Everything
Be an Advocate
Live Life to the Fullest
Laugh Often
Then All You Need is Love

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