The progression of my disability due to Multiple Sclerosis has been difficult. Yet over time I have learned to cope and live well in spite of it.
Each loss of functionality I experienced reminded me of a loss I had once helped a patient deal with. My years as a physical therapist helping patients came back to help me. I now understand far better the importance of living well with a disability, both emotionally and functionally. Life should go on, the needs are the same. Having friends, being involved, doing the things you care about.
This blog is my attempt to share my knowledge and experience as a physical therapist, my memories of my former patients and my own successes at living well with the disability from MS.
Today May 29, 2013 is the day we remember the over Two Million people around the world that are living with Multiple Sclerosis. And "living with" is an important description. MS starts in the young adult (usually diagnosed in t… more »
What would I like people to be aware of in MS Awareness Week? I want more than an abstract understanding. I would like to give people a picture of what the disease is and what it's like to have MS. 1.MS is a disease of the Central Nervous System (the… more »
In my last blog I talked about not letting disappointments or people's insensitivity deter you from moving ahead. And most of all not becoming afraid to challenge others and life itself for what you want. I used a Poem on Roses and it's thorns… more »
March 12-18, 2012 I always like to do something for Multiple Sclerosis Awareness Week. This year I sent in to my local newspaper The Saratogian an article I wrote to be submitted to their Readers View section. The following is the article I submi… more »
Cures?.. Total relief from MS Symptoms?.. Progression prevention? The answer is no to all of these. We with MS do get a shorter duration and decrease frequency of a relapse which is helpful. And there does appear to be a… more »
Ellie’s Rules for Coping Well with MS and Disability
Admit What's Happening
Set a Functional Goal
Attitude is Everything
Be an Advocate
Live Life to the Fullest
Then All You Need is Love