Category: information

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02/04/12

Permalink 01:38:00 pm, by eleanor Email , 1571 words   English (US) latin1
Categories: Advocacy, my life, Thoughts, information

WHAT ARE PEOPLE WITH MS GETTING FROM THESE HIGH PRICED PRESCRIPTION DRUGS?

Cures?..  Total relief from  MS Symptoms?..  Progression prevention? The answer is no to all of these.  We with MS do get a shorter duration and decrease frequency of a relapse which is helpful.  And there does appear to be a… more »

01/12/12

Permalink 08:09:00 pm, by eleanor Email , 341 words   English (US) latin1
Categories: my life, Thoughts, information

MY TRICKS TO STAY UP WHEN MS IS PULLING YOU DOWN

It's hard to stay up when MS is pulling you down.  Whether it's pulling you down due to lack of energy including that terrible MS fatigue or because you haven't come out of an exacerbation speedily yet. Lets be honest you can be upbeat and positive… more »

11/01/11

Permalink 12:39:00 pm, by eleanor Email , 526 words   English (US) latin1
Categories: my life, Thoughts, information

When you start losing functional ability in MS

I was taking my afternoon nap in the MRI machine the other day.  With all the banging , bells and whistles that you endure from that machine scanning your brain and cervical spine it can be nerve wracking.  But I had the technicians turn on ni… more »

05/25/11

Permalink 03:41:00 pm, by eleanor Email , 1072 words   English (US) latin1
Categories: Advocacy, my life, Thoughts, information

HOW DID WE GET FROM BEE STINGS TO FAST TRACK FOR DRUGS SO FAST

And how did I get to walking like this at an event  from being wheelchair dependent  3 years  ago.    How?  Through science and technology and the development of new drugs   Scientific and Technological Research… more »
Permalink 03:39:00 pm, by eleanor Email , 908 words   English (US) latin1
Categories: Announcements, Advocacy, Thoughts, Adapting Activities, information

WORLD MS DAY-2011-EMPLOYMENT

  The first World MS Day was launched on May 27 , 2009 to increase awareness of Multiple Sclerosis and to help people with MS live fuller lives. This year they are highlighting employment as a means to help people with MS live these fuller richer… more »

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Rules

Ellie’s Rules for Coping Well with MS and Disability
Get Knowledge
Admit What's Happening
Set a Functional Goal
Adapt Lifestyle
Attitude is Everything
Be an Advocate
Live Life to the Fullest
Laugh Often
Then All You Need is Love

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