ELLIE'S BLOG on Living Well with MS

A week ago while I was in my wonderful remission (with a little extra help from monthly sol-u-med IV's). I woke up and felt I could hop on my bike' ride up to the Eastside Rec and play a couple of sets of Tennis. Now today I'm down to walking only five or six steps,aching arms and legs and real pain in my upper back.  Such is the sad nature of Multiple Sclerosis.  Here today gone tomorrow. And this is one of the things that is most annoying about this disease! You can plan something and in a flash your plans are dissolved, or requiring major changes because of the fickleness of this disease.

A longtime friend of my son was stopping by to pick him up to go on an overnight hiking trip.  He hadn't seen me for a while and the last time I was not very good.  I was up walking and even climbed up some stairs .  He was just thrilled for me and amazed.  I had been mentioning earlier to my husband Bill that it might be nice to visit his parents our longtime friends.  Now that I was in a remission this could be a wonderful time to visit them as we had not seen them for quite some time. I mentioned this to him and he was thrilled and knew his parents would be so happy.

The next day when they returned from their overnight camping I was in my Exacerbation. It looks like our plans are thwarted.  Hopefully I'll come out of this exacerbation soon and may stay in a remission for a good long time!  Then we can re-plan a trip again.

I'm being optimistic but it's the only way to go!  Now if I stay in an exacerbation and keep getting worse that's going to be hard to take.  But this IV treatment I'm taking monthly should help. And truthfully I know I could feel a lot worse.  So I will have to remember to remember that. And as I don't like being unhappy, I choose to be positive . "I will feel better soon!"

I'm afraid that I will be putting a little bit on hold going around town documenting lack of curb cuts. But I will be catching up on many other things that require no physical output.  Then I'll be all caught up and as soon as possible out and about exploring the curb cuts.         ellie